Preprint: Conducting low-cost community-engaged health research with Deaf American Sign Language users

Abstract

Background. Deaf American Sign Language (ASL) users represent an understudied linguistic/cultural minority group experiencing social disenfranchisement leading to a myriad of health inequities. Community-engaged and community-based participatory research is a best practice when working with Deaf ASL-users; yet, prior research using large funding mechanisms from governmental organizations is mostly unattainable by community organizations. The purpose of this study was to conduct a pilot survey assessing the feasibility of community-engagement methods to administer a low cost, community-oriented, accessible health survey among Deaf ASL-users in Florida. Methods. We established a community advisory workgroup of representatives from major Deaf-serving organizations and higher density localities. The community-academic partnership developed an accessible health survey available in ASL and English. The pilot survey was administered over a three-month period in summer 2018 using convenience sampling strategies including in-person recruitment at community events, and advertisements through Facebook and community e-mail lists. Results. Our recruitment strategy yielded 92 eligible, and diverse, respondents from across the state of Florida. We provide lessons learned from our strategy including considerations for including community members as translation reviewers; recruiting participants across a large geographic area with limited time; and, informed consent strategies. Conclusions. Limited resource environments are pervasive in public health practice and in the communities we serve. Using data from this pilot survey, we identified recommendations for future study methodology to improve community-orientation and participant recruitment among this priority population.

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Tyler G. James
Doctoral Candidate and Graduate School Fellow

My research interests include the application of quantitative and mixed methods to develop and advance public health behavior theory and practice, with specific focus on healthcare access for Deaf community.